*PLEASE RELOAD THIS PAGE FOR NEW INFORMATION*

COMA HELP PAGE:NEW UPDATE

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*Please note* We have to be alert to water tragedies with babies and children. It is very easy for small children to wander away from their parents and end up falling into a large swimming pool, lake or pond. Babies and children are attracted to the water and fish ponds.

It is very hard to watch your children all the time unless you have eyes in the back of your head! I hope anyone who has a pool with small children will cover the pool when not in use. I also feel that there should be a Kiddie Wading Pool for babies and small children to play and swim in. When this small pool is not in use it should be emptied and removed so the children don't turn the small pool over themselves.

There should be a parent supervising at all times when the pool is in use. You can also teach small children from 6 months and over to learn how to swim. I have also seen children on tethers so the parents knows that the children cannot wander off on their own. This is an option you should think about. This would prevent tragedies and keep our children safe.

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UPDATE ON MY MOM: SAD NEWS:'-( I'M SORRY I HAVE NOT UPDATED THE COMA HELP PAGE UNTIL NOW. MY MOM PASSED AWAY ON JUNE 20, 2000.

SHE HAD BEEN VERY SICK LATELY AND HAD BEEN HOSPITALIZED FOR ALMOST TWO MONTHS. HER HEART AND KIDNEYS GAVE OUT. MY MOM JENETT HAD SEVERAL PRE-EXISTING MEDICAL PROBLEMS BEFORE SHE WENT INTO THE COMA. I HAD TO CONSTANTLY REMIND THE NURSING STAFF IN THE DIFFERENT NURSING HOMES THAT SHE HAD OTHER SERIOUS MEDICAL PROBLEMS THAT STILL HAD TO BE TREATED IN ADDITION TO THE COMA. THAT IS ONE OF THE PROBLEMS WITH NURSING HOMES AND HOSPITALS: THEY SOMETIMES NEGLECT TREATING THE COMA PATIENT'S OTHER MEDICAL ILLNESSES. BETWEEN ALL THE HOSPITAL STAYS, AND THE PNEUMONIA WHICH SHE HAD THREE TIMES DUE MAINLY TO THE TRACHEA, HER ILLNESS GOT TO BE TOO MUCH FOR HER.

THE DOCTOR COULD NOT IDENTIFY THE INFECTION MY MOM HAD AND HER HEALTH BEGAN TO FAIL. THAT MORNING OF JUNE 20 WHEN HER HEART GAVE OUT, THE DOCTOR AND NURSES TRIED TO REVIVE MY MOM, BUT TO NO AVAIL. I STILL BELIEVE IN REVIVING A COMA PATIENT WHOSE HEART FAILS. I MYSELF DO NOT BELIEVE IN "DO NOT RESUSCITATE ORDER ." UNLESS THERE IS A DO-NOT-RESUSCITATE ORDER IN A PATIENT'S MEDICAL RECORDS, DOCTORS MUST REVIVE THE COMA PATIENT. I DO BELIEVE IN IT ONLY IF THE COMA PATIENT IS SUFFERING OR IS BRAIN DEAD BUT YOU SHOULD GET SEVERAL SECOND OPINIONS BEFORE MAKING THE CHOICE OF DOING A DNR ORDER; THIS TELLS MEDICAL PROFESSIONALS NOT TO PERFORM CPR.

I HAD MADE IT CLEAR THAT I WANTED MY MOTHER TO BE REVIVED AND GIVEN CARDIOPULMONARY RESUSCITATION. CPR REFERS TO THE MEDICAL PROCEDURES USED TO RESTART A PATIENT'S HEART AND BREATHING WHEN THE PATIENT SUFFERS HEART FAILURE. IT IS VERY IMPORTANT TO KNOW WHAT IS IN THE MEDICAL RECORDS AND TO KNOW WHAT YOUR RIGHTS ARE. FIND OUT ALL FACTS CONCERNING THE CARE AND TREATMENT OF THE COMA PATIENT' MEDICAL CONDITION AND MEDICAL AFFAIRS. TAKE THE APPROPRIATE ACTION THAT BEST SUITS YOU AND THE COMA PATIENT. IT IS UP TO THE PROXY AND FAMILY MEMBERS TO TALK TO THE DOCTORS REGARDING DNR OR CPR AND THE DOCTORS SHOULD NOT FORCE YOU INTO DOING ANY MEDICAL PROCEDURES THAT YOU DO NOT AGREE WITH. ONLY THE PROXY IS ALLOWED TO MAKE THIS DECISION BASED ON WHAT THEY FEEL IS IN THE COMA PATIENT'S BEST INTERESTS. YOU ALSO HAVE TO TAKE INTO CONSIDERATION THAT THE BODY AND MIND NEED TIME TO HEAL. THIS IS A SERIOUS SOUL SEARCHING DECISION THAT FAMILIES HAVE TO MAKE AND DECIDE THE FATE OF THEIR LOVED ONES.

I BELIEVE IT WAS MY MOM'S TIME AND GOD TOOK HER. MY MOM DID NOT SUFFER, SHE PASSED AWAY IN HER SLEEP. IN THE END GOD DECIDES THE FATE OF THE COMA PATIENT AND YOU WILL FEEL LIKE EVERYTHING WAS DONE THAT COULD HAVE BEEN DONE.

I FEEL I DID THE RIGHT THING BY HAVING THE DOCTOR AND NURSING STAFF ATTEMPT TO REVIVE HER BUT IT WAS NOT MEANT TO BE IN MY MOM'S CASE. MY MOM IS HAPPY AT PEACE WITH GOD AND HER LOVED ONES NOW. I'LL STAND WITH MY BELIEF THAT GOD IN THE END DECIDES THE FATE FOR US ALL.

I FEEL VERY DOWN BECAUSE I WAS MAKING PROGRESS WITH MY MOM TO THE POINT THAT SHE WAS SAYING FULL WORDS. THE LAST TIME I SAW HER SHE SAID TO ME: "I LOVE YOU." I KISSED HER AND TOLD HER HOW MUCH I LOVED HER, AND KISSED HER GOODBYE. I DID NOT KNOW THAT WOULD BE THE LAST TIME I WOULD SEE HER ALIVE. IT HURTS, BUT I KNOW MY MOM IS AT PEACE AND IS UP IN HEAVEN AND THAT HELPS ME TO COPE WITH HER LOSS.

MY MOM HAS LEFT BEHIND A LEGACY WHICH IS THIS COMA HELP PAGE WHICH I PLAN TO DEDICATE TO HER ON MY WEB PAGE. I WILL CONTINUE TO UPDATE MY COMA HELP PAGE WITH NEW INFORMATION AND TECHNIQUES, AND ANY IDEAS AND ADVICE I CAN SHARE WITH YOU.

*I WANT TO MAKE IT CLEAR THAT WHAT HAPPENED WITH MY MOM SHOULD NOT DISILLUSION ANY ONE OR DISCOURAGE THEM FROM COMING FOR HELP AT MY MY COMA HELP PAGE. YOU MUST UNDERSTAND THAT EACH COMA CASE IS DIFFERENT AND SO EACH OUTCOME WILL BE NOT BE THE SAME.*

I KNOW THE STIMULATION TIPS WORKED ON MY MOTHER TO THE POINT THAT SHE WAS AWAKE, AWARE, AND WAS SAYING FULL WORDS. THEY WERE ALSO HELPING OTHER COMA PATIENTS TOO.

I WILL CONTINUE TO BE A COMA ADVOCATE AND KEEP THIS COMA PAGE UPDATED WITH NEW INFORMATION. I AM GOING TO GET MORE TRAINING ON STIMULATION TO HELP COMA PATIENTS. I HAVE LEARNED A LOT FROM WORKING WITH MY MOM AND I WANT TO CONTINUE TO HELP, AND TO SHARE THIS KNOWLEDGE WITH THE FAMILIES AND FRIENDS WHO HAVE A LOVED ONE IN A COMA.

MY MOM WAS ACTIVE IN THE SCHOOL SYSTEMS HELPING STUDENTS OF ALL AGES. SHE HELPED HIGH SCHOOL SENIORS WHO WOULD NOT GRADUATE WITH THEIR CLASS, BECAUSE THEY NEEDED ONE CLASS TO GRADUATE . MY MOM EITHER GOT THEM EXCUSED FROM THE CLASS THEY NEED TO GRADUATE OR LET THEM GRADUATE AND TAKE THE COURSE IN THE SUMMER.

MY MOTHER JENETT WAS ALSO INVOLVED IN POLITICS WORKING AND HELPING OUT IN ALL THE DEMOCRATIC PARTY CAMPAIGNS. MY MOTHER WAS A VERY FRIENDLY LOVING GIVING PERSON WHO LOVED TO HELP PEOPLE IN NEED. SHE IS STILL HELPING BY LETTING ME GAIN THE KNOWLEDGE ON HOW TO BE A COMA ADVOCATE AND LET ME SHARE HER LIFE WITH YOU WHILE SHE WAS IN A COMA AND THE AWAKE STATE.

MY MOM WILL BE BADLY MISSED:-( MYSELF AND MY AUNT WILL ALWAYS HAVE LOVING MEMORIES OF HER IN OUR MINDS AND HEARTS.

I WANT TO THANK ALL THE VISITORS WHO ARE SENDING CONDOLENCES ABOUT MY MOTHER.
IT HAS BEEN HELPING ME TO COPE WITH THE LOSS OF MY MOTHER.

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New stimulation tips: 9-11-2008

Ask the nurse to give you a moist stick that looks like a stick which has a flavored small sponge on the tip.
The sponge stick is called "Toothettes" You can ask the Nurse who is taking care of coma patient for this
and also ask the Doctor if it is safe to use.

Here is an image of what it looks like:

Have the Nurse show you how to do it. I will find out the name of this stick which has a flavored small sponge on the tip and put it on this page. To use the sponge stick go with the Nurse put the sponge tip around the lips. Ask the Nurse if it is okay to put a little part of put the sponge tip inside the mouth. At first in the beginning do it around the mouth and than have the Nurse show you how far to go into the mouth. I did this with my mom a lot. The Nurses showed me how far I could put it in her mouth and my mom took the sponge tip into her mouth and rolled it round by herself like a lollipop. I was still holding the end of the stick. We could see my mom enjoyed it a lot.

+IMPORTANT+ NEVER LET GO OF THE SPONGE STICK!!!!!!

The other new thing I tried was using an adorable cat hand puppet which she looked at as I used the puppet to talk to her. Her eyes followed the puppet everywhere. This technique would be good for both adults and children too. It was both stimulating and and gets their attention too. All of this is available to purchase which you can find at amazon.com.

If you get disillusioned over the medical care that the coma patient is receiving in the Nursing Home, tell the staff. If it does not get better check out other Nursing Homes or if you can bring the coma patient home, if you have the room. I feel that is the best course to take if you can do it.

The coma patient has to have medical coverage such as Medicare and Medicaid. If the coma patient is at home you would have full control of the medical staff as well as the TBI staff.

You can spend more time to do stimulation at any time you want to. My Aunt and I were looking for a bigger apartment to bring my mom home. I wish we had done this in the first place but we did not have the room or knowledge of how to set this up when my mom first went into the coma. Although we did not get the chance, it is something you can consider.

You would have a good medical staff as well as TBI staff too. You would also be in control and be able to make sure the coma patient was getting the best care. There are a lot of hospitals that also have a team of doctors, nurses and a TBI staff that can work in your home. Look in the Yellow Pages under hospitals and nursing homes to find information on home care. You can also call these places for advice and information.

Please feel free to e-mail me and to ask questions, or if you need advice and just want to talk. I will e-mail you back. Also remember I will continue to update this page when I have more information and advice. Don't forget to reload the page for new updates!

hline Color BarCute Little Angel

Please pray for my Mom Jenett, Aunt Judith and other Coma Patients who passed away.
Please also pray for Joshua, Jack, and all Coma Patients in the world
Lets Root for them!!!!

THERE IS ALWAYS HOPE, SO I STICK TO MY MOTTO: NEVER GIVE UP HOPE!

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Past information: 2-4-2000 You may need to reload or refresh the page to get the newest news and updates.

I have not gone to see my mom recently. What I have been doing is calling there 3 times a week. I will not let my mother's Nurse hang up till I got all my questions answered. I am told my mother is responding to certain Nurses and they tell me that she has been able to communicate with them. When she takes a shower she signals to the Nurse where to go and when to stop! My mom is also been crying and I think it a lack of seeing me. That's very hard on me. The best thing I can do is get out there to see her!

Past update 12-10 1999

My mom is still in a Hospital Based Nursing Home. After talking with the Head Nurse, it seems that she is not getting any stimulation at all. I was planning to do the stimulation myself but with my injuries I have not been able to do all the stimulation I wanted to do on my mom. Not being able to visit my mom has been very hard on me. The Nursing Home is nowhere near where we live. I did noticed the last time we went to see my mom, her hands and feet were clubbed. Both her hands and feet are in a curled position. She is not getting the splints regularly like she should and the damage has been done to her hands and feet. It is important to make sure the coma patient gets the splints they need to prevent this from happening to them.

Here are thee procedures that I have heard about. that, in my opinion, can be either beneficial or destructive to the coma patient:

  • 1) Shunt - A procedure to draw off excessive fluid in the brain. A surgically-placed tube running from the ventricles which deposits fluid into either the abdominal cavity, heart or large veins of the neck.
  • 2 ) Self Induced Comas - The procedure, called medically induced coma, slows brain activity almost to a stop by pumping huge doses of barbiturates into the patient. The goal is to give the injured brain a rest in the hope it will heal itself.
  • 3) Chambers: A pressurized chamber that allows for the delivery of oxygen in higher concentrations for therapeutic benefit.
  • Please do not use these tests without checking with doctors and asking what HARM , if any they can do to the coma patient, infants and children.
    I know of a baby who was put through theses test . It did more harm to that baby then good. Please give the body and brain a chance to heal!!!!
  • Please E-Mail me if you have any information on the three tests mentioned above.

Before you agree to any procedures learn more about them and make sure they are safe. This is your right as a family member, Proxy (living will) or a Designated Representative. Please e-mail me if you have any information on these three procedures.

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My Aunt and I are looking into bring my mom home. This way we can be with her all the time. I would be doing stimulation and we would bring in a team to take care of all her medically aspects and also implement the five senses as well as occupational, physical therapy and speech therapy and get her weaned of the trach she is still wearing for oxygen.

After all the nursing homes she has been in, we feel this is the best course to take. We will be checking this option out thoroughly before we can bring her home.

Remember that you are paying the Nursing Home or TBI place to take care of the coma patient. You do not work for them, they work for you. You have a voice in all aspects of the medical care and all around care that the coma patient is receiving. You have the right to ask questions and make suggestions. You know the coma patient better than any one else. Please, never give up hope. We haven't, and on December 18, 2000 my mom will have been in a coma 3 years. Lets pray for each other also please pray for the coma patients and their families and the coma patients that have passed on.
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PAST UPDATES:

6-2-99 update:

My mom is back in the Hospital again 6-2-99 less than a week from her last Hospital stay. She is sick with a fever, diarrhea, vomiting and is very dehydrated. The Doctor thinks it's a bladder infection he did cultures to confirm this. My aunt and I are waiting for the results and want to find out what is really going on with her.

My mom was in the hospital before on 4-25-99 with pneumonia and a high fever. She was half way back to getting better, then she got the same illness again. My mom ended staying in the hospital for a month 5-25-99. The doctor had to do deep suctioning to get out all the secretions and take cultures to find out what strain of pneumonia she had and what antibiotic to prescribe. This has made me very frustrated because this is the sickness she has ever been and I could not visit her due to my back surgery. My mom's Birthday was May 18th and I could not go to see her.

I have mentioned this before but it bears REPEATING: The Coma Patient hears everything that is being said to them or around them. So keep in mind to always talk to the Coma patients, read to them, and bring in their favorite music helps a lot, also. Never stops stimulating the coma Patient; there is always something you can do: rub their face, hold their hand or just talk to them whether they feel well or not. They will know you're there and care. I think the stress and that awful loud sounding humidifying machine compressor contributed to my mom's already lowered body immune system.

You have try to put yourself in the coma patients place and condition to understand that they cannot say turn that machine off! My mom has to hear this noise 24 hours a day and that takes away from any good stimulation I have done on her. She has no way of tuning it out and it cause her stress. If you have the same type of problem get the facility to repair or change that negative sound stimulation! I was getting headaches from the sound and it kept visitors from coming more often to see her.

If you see something you do not like which may effect the Coma Patient's well-being, speak up! You are paying the Nursing Home or Faculty to take care of your loved one!

As soon as I get the okay that my mom is accepted to this other place I will send a PRI Report from the Hospital to the Hospital-based Nursing home and move her. We are praying my mom gets in real soon! It is a Hospital-based Nursing home where, if my mom needs to be hospitalized again, she would not have to be uprooted, placed in an ambulance, and transferred to the nearest hospital. They would just have to wheel her bed down the hallway into the hospital wing of the Nursing home. I will be doing most of her stimulation myself.

Since last year I have had to move my mother four times due to bad medical care or no stimulation being done in these Nursing Homes. We would find my mom just lying there in bed staring at nothing but the ceiling. This current Nursing Home where my mom is now is the pits. No visual stuff that would make it like home. No shelves or furniture where we can put her stuff like family photos and other things. We can't even hang up anything on the walls because it's not allowed!

I have found that no Nursing home is perfect, so you have to stay on top of things and don't be afraid to ask questions or state your feelings if something does not look right or feel right to you. Unfortunately the Coma Patient cannot do this and they must count on YOU to take care of them.

One thing we all have to take into account is that we must also take care of ourselves and our own health. If not, in the long run who will be there to take care of your loved one or friend who is in a coma?

Don't feel guilty if you cannot visit as often as you would like. I have not been able to visit my mom as much as I would have liked to in the previous months due to my injuries. My mom still reacts to my aunt or myself; we stimulate her and she knows we are there and that we love her. If events in your life stop you from seeing your loved one, just try to go as often as you can. Perhaps another relative or friend can go in your place, and they can explain to the patient that you are not feeling well, but will be there as soon as you can.

In many instances you may be the only one going to visit your love one. Do not feel guilty; go whenever you can and show how much you care when you see your loved one. He or she hears and will understand.

Here in New York State to transfer your loved ones it cost nothing ( your loved ones coverage pays) if the Coma Patient is in a Hospital. If I was transferring my mom from one Nursing Home to another Nursing Home there is a charge (Not cheap!) to move her to the new Place. The only other way to get the Coma Patient transferred for free is if the new Nursing Home offers something beneficial to the Coma Patient that the current Nursing Home does not offer. Your best bet is to talk to the Coma Patients Social Worker or Case Worker assigned to the Coma Patient they do help out must of the time:-)

We all need to pray for each other and our loved ones or friends that are in a coma. Please pray for my mom I will be doing the same for all Coma Patients and their families.

MY MOTTO: NEVER GIVE UP HOPE!!!!!!!!!!!!!!

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2-24-99 update

On December 30th 1998 my mom went back into the Hospital. It is attached to a Good Nursing Home. All I know is the previous Nursing Home didn't take such good medical care of my mother. They did not listen to me. I have been telling the staff that my mom did not look well. She ended up back in the Hospital as of 12-30-98 with a high white blood count and fever. The TBI/Nursing Staff had let a bladder infection go untreated for a long time and the infection went into her blood stream. The Doctors put her on a strong antibiotic and with absorbent diaper pads, and she was released from this hospital on 1-12-99.

I moved my mom again and she is in a better Nursing Home that is attached to this Hospital that I like. If my mother gets sick again either the Nursing home or Hospital can treat her. My mom is doing much better she has been crying to the soundtrack tape of "GODSPELL" and making crying sounds as well as new sounds; trying to form words that sounded like "Susan" and "Please!!!"

This Nursing Home has good nursing care and if she gets sick(God forbid) my mom is just wheeled down to the hospital part of this place. They also run a free pick-up van to our home (and back) which we can take on certain days and times!

One of the hospital nurses said my mother was not in a deep coma any more because she reacts to stimulation, which she showed us!!!

My aunt and I have gotten some very good responses from my mom. WE are getting the best responses from her in this new place; crying, with tears; and other noises coming out of her mouth. I have been doing visual stimulation with her showing her things I gave her in the past. When my mom started to crying harder and I told her to let it all out. She had her mouth wide open making other noises and words that sounded angry. I asked her if she wanted to sing opera:-)

I got some sponge sticks with water and the Nurse put it around her mouth, then at the opening of her mouth. My mom pulled it in and roll it around her tongue! She loves water. We were told that these were all reflex responses and the nice doctor who I originally thought was great, turned out to be not so nice. He is an Internist who thinks he knows it it all and would not even listen to our opinions, observations, and comments. This Doctor brought in a Neurologist who said "no" to a MRI test; that it should not be done. Another Doctor said "no" to her ever being weaned off the oxygen to breath room air on her own. I feel when she is well enough they can start weaning my mom again and eventually remove the oxygen breathing tube from her throat. I also think an MRI would show the defects and damage to her brain and what is still workable.

My belief is based in an article I read that stated when the brain is damaged or injured in any way there are dormant blank brain cells in the back of the brain. They move to the front of the brain that replaces the damaged or hurt brain cells. These cells need to be taught (they are like blank slates but can be retaught ) For over a year now we have seen this with our own eyes through my mother's improvements, and also from e-mails I have received from the families of other coma patients who have reported some progress. My mom's doctor said she was an "old case" (One Year) and he told me to wake up to the fact that she will be comatose for the rest of her life. We refuse to give up on her!

I know my mom and she is in there, trying to come out! In no way shape or form is my mom (Jenett) comatose and unresponsive! She looks as Nurses come into the room and moves her head and neck on her own. Just because my mom does not react at their beck and call she is falsely labeled "comatose." I have her crying and noises and words on tape. The Doctor said it was just breathing reflexes.

She also has been sick a lot recently and these Doctor always seemed to show up when she is not feeling well and does not want to react. My mom has gotten a bum deal for a year now. If it wasn't for my aunt and me I would wonder if she would be still with us. She is a fighter like her daughter:-)

We took action. Both my aunt and I talked to this Nursing Home. We talked to the Social Worker there, and then with the Head Doctor of the Nursing Home. I explained what happened with the previous Doctor's disheartening comments and how angry and depressed we got about the conversation we had with him that night. He understood and is assigning a new Physician to be my mom's Doctor. He is also going to find out why they are not doing a MRI.

The Head Doctor then went to see my mom in the morning but she did not react. I got the impression from talking to him on the phone she was sleeping. He said he opened her eyes but they closed in 3 seconds again. My mom closes her eyes when she wants to sleep. I explained to him my mom has been sick with urinary/bladder infections and other medical problems. She needs time to rest and heal.

He also stated some of my mother's brain cells were dead most likely do to an Anoxic coma and her sudden lack of oxygen to the brain when she first went into this coma. I told him I got reactions from my mom from the beginning as well as now. I told him how does he know this and what's going on in her brain? When no EEG, MRI or Cat Scan Tests were done to check my mom's brain functions?

My Mom is getting a MRI very soon! I liked this Head Doctor a lot!!! He is very opened minded and is ordering an MRI now and is willing to allow an outside Coma Specialist (who is top notch) come to my mom's Nursing Home to examine her. (We are hoping and praying he will come soon) He will listen to everything this Doctor suggests and will follow his recommendations.

Both my aunt and I pray we are there at this medical/stimulation consultation because she reacts to both of us as well as the "GODSPELL and BEATLES Tapes. I asked him to please schedule this examination/evaluation when we can also be present to help my mom get motivated. I just pray she is in not in one of her stubborn moods. (Boy, does she have stubborn moods but don't we all?:). I told the Head Doctor to wait until I recover from bronchitis I will also be having surgery (3-19-99) as I was badly injured in a car service accident and have a long way to go as far as getting myself fixed and healed!

I would like to comment about any other preexisting medical conditions that a patient might have had prior to being in a coma. Treatment for those preexisting conditions must continue throughout the the coma; Those conditions do not go away, especially when they start to respond.

In my mom's case she needs her anti depression medication; her crying tells me this (she has had an Acute Depression before the coma). It is important to talk with your Doctor, Social Worker, Head Nurse and TBI Staff to let them know they had preexisting medical conditions. I forced the last Nursing Home to take my mom's blood pressure everyday and put her on blood pressure medication as well as diabetic medication. She had these preexisting medical conditions that stayed with her even though she ended up in a coma. You need to tell the staff and doctors about preexisting medical conditions that have to be taken into account and implemented in all aspects of the coma patient's medical treatment.

My belief is that untreated, these preexisting existing medical conditions might prevent or hold back a coma patient from fully coming out of the coma. (No I'm not a Doctor!:)

My aunt and I believe that the coma patient can hear everything that is said about them. No "Negative" talking should be discussed near the coma patient's bed. On certain days the coma patient may not react due to the fact that they may be coming down with an illness or are just being stubborn or frustrated. Families should make the facility aware of their feelings of this and ask questions. If you feel you are not getting a satisfactory answer to your questions, talk to the Head Doctor at the facility the coma patient is in.

We have continued to monitor my mother's progress through the use of audio tape recorders, a still camera and will soon use a video camcorder to record my mother's reactions and sounds. Using one or more of these tools with the coma patient would be a good thing to do.

It is very important to take care of yourself. We tend to disregard how we, ourselves, are feeling in order to put all of our energy to taking care of "loved ones". I have learned that I have to take care of myself first, because I end up not being there with my mom "in person" as much as I would have liked to. Having someone who is seriously ill or in a coma causes stress which can lower the bodies immune system. I know this because it keeps happening to me. Please take care of yourself; no one else will do it for you. I am emphasizing this again to try to find a "Coma Help Group" in your area. I have none near me, so it's hard.

My mom has been in a coma for over a year now and is more alert and awaken on and off. One wise person from NACD Founder/Director Bob Doman wrote this to me: "One of the things we say about all of our brain injured patients is that the only thing that they do consistently is to be inconsistent". This meaning that the Coma Patient does not have to react all the time . Again as I mentioned the coma patient may not react due to the fact that they are tried, may be coming down with an illness or are just being stubborn or frustrated. I also like to thank Jennifer who also works for NACD she has given me excellent help and advice. NACD is a excellent Organization that treats "Coma Patients" and other developmental problems too. Make sure you check out there
Web Site and see if they have a branch located in your area. You can also e-mail them with your questions.

I have heard from several people about their loved ones who have been in a coma for months, three years, or twenty years, who have come out of their comas! There is no time limit as to when a "coma patient" will wake up totally and come out of it. It still is not easy when they do come out of a coma. There is a lot of hard work and effort for both the coma patient and their families that does not happen over night it is a long process. They can all use our prayers.

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New Update Terri's web site has been updated and is now called "The Terri Schindler Schiavo Foundation." I recommend visiting this site. It has very informative information and valuable insights as well. " You can go to their website at: http://www.terrisfight.org/

Terri Schindler-Schiavo passed away on Thursday March 31, 2005 at approximately 9am in a Florida hospice. Terri did not die a "peaceful" death, she died an unnecessary, uncomfortable and cruel death as a result of the removal of her feeding tube. Unfortunately Terri did not have a "Living Will" or "Proxy" so her husband, as her "legal guardian," went against her parents wishes and allowed her to die a painful death.

Terri is now at peace in Heaven. My heart and prayers go out to Terri's family and friends. Terri leaves behind an important legacy . What happened to her teaches all of us an important lesson. The laws need to be changed so that in the future, deprivation deaths are not forced upon coma patients; and for that matter, ANY disabled, elderly and/or chronically ill individuals.

Terri was a disabled woman who could not speak for herself. We need to be a voice that will stop others from suffering Terri's fate of being denied nourishment resulting in her death by starvation. Please go to Terri web site at: http://www.terrisfight.org/ We all can help by the way we vote, and by writing letters to Members of Congress as well as our local politicians. Write to newspapers and call in to express your views on any of the "talk-radio" stations. We can also e-mail and call our elected officials to change the laws for the better: keeping the disabled, elderly and chronically ill individuals safe from the way the laws are now.

Making a "Living Will" or becoming someone's "legal proxy" or appointing one for ourselves is something we should all think about doing. If we wait and put it off it may become too late to act upon this. Unfortunately illness or injury or circumstances can unexpectedly happen at any time, making us unable to appoint the person we want to handle all our medical affairs, legal affairs and wishes. To make sure this doesn't happen, learn about and download a "living will" at these web sites:

My Motto is: NEVER GIVE UP HOPE!!!!!!!!

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