HOW TO FIND
A DOCTOR or a dentist!
by Moria Merriweather, copyright Moria Merriweather,
last updated 11/24/02
PUBLICATION NOTES: Please
send corrections, updates, and additional information to firstname.lastname@example.org.
information in this file is NOT guaranteed to be accurate, and may actually
be wrong. The information in this file is NOT complete, and in
some areas is preliminary. (Have to start somewhere.) The information
in this file is NOT an endorsement of any company or practitioner and should
NOT replace your own judgment and investigation. The information
this file is not medical advice, and should not be
taken as medical advice. If you desire medical advice, please see
a licensed medical practitioner. Thank you. Thanks also
to all who have provided the information which I've included here.
Table of Contents
& OSTEOPATHS trained in cranial manipulation
BEHAVIORAL OPTOMETRISTS & VISION THERAPISTS
GEOGRAPHIC AREA SUPPORT & INFORMATION GROUPS
Finding a doctor who is compatible with your
needs and supportive of your goals, methods, and limits is a very personal
matter. What is perfect for one person may be awful for another. This file
is a list of some IDEAS, which you should use or ignore as suits YOU.
There is not a cookie-cutter one-size-fits-all "answer" to how find a doctor
or what to look for. Your mileage may vary.
are you looking for?
You may find it helpful to think about what attributes
you want from this doctor you are seeking. For example, you might
want someone who is empathetic, listens to you, is flexible, has treated
ASD kids a lot, has supervised chelation a long time, etc. There
are lots of different things you may be looking for, in the ideal case.
It may be very helpful to think about these things, and consider which
are most important to you.
Sorry to bring this up, but there are very few
doctors out there who are really greatly experienced with chelating children
with ASD. This is not wonderful, but it is reality. The really experienced
doctors are probably not taking patients, or else have waiting lists that
go out for months. This is also not wonderful as regards your prospects
for finding the ideal doctor. Furthermore, after you read this list
for a while, you may know as much about various aspects of chelation as
some doctors do. All of this does NOT mean you won't get help with
chelation-- it means that there may be some serious trade-offs involved.
Such as traveling farther than you would like, or waiting longer, or having
a doctor who will monitor but not direct chelation, or possibly having
a doctor who is not as supportive as you'd like. You may need to consider
options that are not exactly ideal.
My impression is that a lot of parents do work
out ways to "make it work" using their "regular" pediatricians. Many
also wait in line to see Dr. Holmes and others. And some find a doctor
who is willing to listen and learn with them. What will work for
you is a personal decision, and will be influenced by the choices available
more sobering ideas
Mercury chelation, and how to do it, are very
controversial. There are WIDELY divergent protocols. The biggest danger
that I'm aware of regarding mercury chelation is the potential for "mercury
redistribution" due to using a higher risk protocol. There is also
some risk from using stuff that can cause adverse mercury reactions (like
chlorella). Many doctors do prescribe badly in the area of mercury chelation.
If you would like further evidence of this, try http://www.dmpsbackfire.com/default.shtml
I don't mean to make you worry NEEDLESSLY-- rather I'd like you to worry
constructively. I'm just mentioning that you may want to carefully
evaluate the suggestions and prescriptions your doctor provides.
Mercury chelation is, sadly, a risky business. I've read quite a
bit of writing by adults who have STAYED very toxic, so the potential to
try a lot of things but NOT get detoxed is real to me. And I believe the
stories I've read on this list, from parents and from Andy, of both kids
and adults who have had significant problems using higher risk protocols.
Okay, that's my 2 cents worth. You have been warned.
of candidates (general)
Here are some places you can find POTENTIAL CANDIDATES.
If you use several of these ideas, you may (hopefully) come up with prospective
doctors. You can then work on finding one who is suitable for you.
the DAN doctor list.
NOTE: to be listed on the DAN list, a practitioner
must have attended one or more DAN conferences, or state that they agree
with the DAN philosophy. (See statement of DAN philosophy: http://www.autism.com/ari/danstatement.html
.) As stated on the webpage (5/23/02) "Following is a list of physicians
and other practitioners who have attended one or more DAN! conferences,
as well as a number of other health practitioners whom we believe to be
sympathetic to the DAN! approach." See http://www.autismchannel.net/dana/dan01doc.htm
for more detailed comments about DAN doctor's not being certified.
Starting in August 2002, additional information
is listed for some of the DAN practitioners. This information is based
on a survey which DAN sent out to the practitioners. It includes
a list of which types of treatments the practitioner uses, and when they
have attended DAN conferences. This is intended to try to help parents
evaluate whether a particular practitioner is appropriate for their needs.
GSDL will give you referrals to doctors in your area
who order their tests. You can call GSDL at (800) 522-4762 from 8AM to
8 PM EST. From the phone menu, select "3" (patient) then "2" (other), and
then you will get a live person. State that you are calling for doctor
referrals. They will look for these based on your zipcode. They will then
send you the information by email, fax, or postal mail. They will NOT give
you the information on the phone. This should be a pretty good source of
leads to "alternative" type doctors (who may or may not know anything about
Ask any local parents groups. Ask other parents.
Ask any support groups you know of, in your area. See the list of area
groups, at the end of this file.
Ask any other support people who work with your child
(e.g. speech therapist, teachers, etc.)
Ask on this list or other on-line lists. Write something
with your location:, e.g. "I am at the North Pole and need a good doctor.
There are some doctors to whom Andy Cutler consults.
Andy will also consult to other doctors (besides those listed here), by
arrangement. Call for information (425)557-8299 or write to AndyCutler@aol.com
. Andy's comments on this topic can be found at http://groups.yahoo.com/group/Autism-Mercury/message/61051
You can read more about Andy here: http://groups.yahoo.com/group/Autism-Mercury/files/ANDY_INDEX#Who_is_Andy,
or at his website: http://www.noamalgam.com
John Ruhland, ND, in Seattle, Washington. In a couple
of months [from 11/02] he will have a nurse practitioner in his office
who has worked with developmentally impaired children for many years. (206)723-4891.
Larry Miller, DO, near Philadelphia, Pennsylvania.
Dr. Rick Marschall ND, Port Angeles, Washington.
(Dr. Marschall no longer sees patients in Tacoma. Port Angeles is several
hours from the airport, so this is probably only relevant to people who
actually live in Washington somewhere around Port Townsend, Sequim, Port
Angeles or certainly west of Bremerton. (360)457-1515
Karyl Bental, DO, in Augusta, Georgia. (706)627-1301
Dr. Bental is interested in treating developmentally impaired children,
and toxic children & adults. She is also a practicing osteopath, and
does osteopathic manipulation.
Dr. Jaquelyn McCandless in Woodland Hills, CA. [She
is not listed on the DAN list.] Dr. McCandless writes on this list.
Dr. McCandless currently has a waiting list of applicants. email: JMcCandless@prodigy.net
You can read more about Dr. McCandless at her website: http://www.Autism-RxGuideBook.net
Her wonderful book is for sale at this website.
DDI does not give doctor referrals. Their phone message
says, instead, that they suggest checking the following websites:
American College for Advancement in Medicine. [Note: some or many of the
practitioners on this list may be doing cholesterol/EDTA "chelation" rather
than mercury "chelation". Since ACAM advocates EDTA/cholesterol chelation
(which is not appropriate for mercury toxicity),
you will need to take care in checking for this. On their list, the designation
"CT" means that they are experienced with chelation (but it may be cholesterol/EDTA
chelation). (Note: I have looked at the doctors listed in my area,
and there are "alternative" and mercury chelation doctors included. There
is also a reasonable amount of overlap here with the DAN list, at least
for doctors in my area.)]
American Academy of Emergency Medicine. [This does not seem very related
American Academy of Nurse Practitioners. [This does not seem very related
International Association of Oral Medicine and Toxicology
Someone on the list recommended checking at http://www.aaem.com
American Association of Environmental Medicine. Sounds good. Please
note this is NOT the same as www.aaem.org, which is listed a few lines
Lisa Lewis & Karyn Seroussi have a GFCF diet
site and newsletter called ANDI. The website includes a short list
of medical practitioners, here: http://members.aol.com/autismndi/PAGES/doctors.htm
These are practitioners who have been recommended by members of their group
(who are likely to be parents using the GFCF diet). Please note this
list includes a couple of practitioners in Canada and Australia. They also
list the following additional (not already mentioned) organizations with
Kirkman's is willing to talk with people about doctors
who recommend their products. They have a short list of doctors like this,
many of whom are likely DAN doctors (but not necessarily all). Call (800)
245-8282 and talk to any of the customer service people.
International Association of Healthcare Professionals. This includes an
on-line directory of "alternative" practitioners of many different types--
ND, OD, massage, etc.
Australasian College of Nutritional and Environmental Medicine; referral
service information: http://www.acnem.org/referrals/referal_service_main.htm
[This appears to me to be a group that does cholesterol chelation......
I can't tell if they teach mercury chelation.] "ACNEM provides a service
to put members of the public in touch with medical doctors and dentists
in Australia and New Zealand
who have graduated from the ACNEM Primary Course.... There are also some
medical doctors and dentists on the referral list in other countries -
currently Malaysia, Hong Kong and South Africa.
Although the service is provided free of charge, we do ask those who use
the service to make an AU$11 contribution to keep keep it going - we receive
no external funding for any of our activities." This page also lists
affiliated Orthomolecular Medicine associations in: Mexico,
Canada, Brazil, Argentina, Australia, The Netherlands, Switzerland, Germany,
France, Italy, UK, Denmark, Beligium, US.
Here are some things you could ask. (Select those
appropriate for you.) You should also add additional questions that address
other concerns you have, and/or other health needs of your child.
Once you have a list of questions, you can decide which ones you want to
try asking on the phone. You may need to schedule an appointment to ask
questions. You may want this to be a separate consultation to discuss
the doctor's practice, or you may wish to ask these questions at a "regular"
If you know other parents who see a given doctor
then you can ask questions like these:
How do you help new patients to get to know you?
May I come in for a consultation to discuss your practice?
[If DAN doctor:] When did you last attend the DAN
[If DAN doctor]: How many DAN conferences have you
How much do you charge? How often are visits typically
Do you take my insurance? [or] Are you on my medical
Have you supervised mercury (or heavy metal) chelation?
What methods of mercury (or heavy metal) detox do
you use or prefer?
How did you come to use or prefer these methods?
What chelation agents do you use?
Do you require that I use the methods of chelation
that you prefer?
What other requirements do you have of me if my child
is your patient?
Is your practice primarily children with developmental
disorders? [or xxx condition]
Are you willing to learn about mercury (or heavy
I am planning to chelate. Will you help me to monitor
my child and order tests for us?
Do you have written materials for new patients? (ask
What tests do you typically run on a new patient
(with xxx condition)? About how much does this cost?
What tests do you typically run during chelation?
How often? About how much does this cost?
How do you handle urgent or emergency medical problems?
Who covers your practice when you are away?
Do you answer questions by phone or email?
what do you like about this practitioner?
what do you dislike?
how long have you been seeing this doctor?
what methods of treatment has s/he recommended for
does s/he listen to your questions?
how long does s/he usually spend with you?
This is just a start on this topic, please be
this post has an interesting comment about asking a "regular" physician
to do tests to monitor chelation. See LAST paragraph in post.
of cranial-sacral therapists & osteopaths trained in cranial manipulation
Info on cranial-sacral therapy:
of behavioral optometrists, and vision therapy
The Cranial Academy http://www.cranialacademy.com/
The Cranial Academy has a certification in cranial osteopathy. It is a
professional organization of osteopaths. As listed on this page: http://www.cranialacademy.com/finddoc.html
, they will send you referrals BY MAIL if you send them a SASE and location
you are inquiring about: The Cranial Academy, Referrals, 8202 Clearvista
Pkwy #9D, Indianapolis, IN 46256. (317) 594-0411
The Upledger Institute
International Association of Healthcare Professionals [Code "CST" and "CST-D"
are used for cranial-sacral therapy. The code DO is used for "Doctor of
Osteopathy". Some osteopathic doctors do cranial sacral or other similar
forms of adjustments. The code "O.M.M." is used for "Specialist in
Osteopathic Manipulative Medicine" --I'm not sure but this sounds related.]
Behavioral optomotrists do a lot of things that
other eye doctors do not. For example, they do vision therapy, and test
how the eyes work together (or do not).
General info on vision therapy (from the above sites):
The same general ideas about finding and screening
candidates apply as listed about doctors. Be very careful when selecting
a dentist. Composite fillings require more skill in placement than amalgam,
and the risk for further mercury exposure during amalgam replacement is
great. Here are some sources of candidates, for dentists:
this is a list of Mercury Free and Biological dentists.
International Academy of Oral Medicine and Toxicology - has a list of dentists
Holistic Dental Association, Inc.- This link goes to the page to search
for members of their organization.
List of mercury free dentists from ALT Inc. [Includes Canada,
Mexico, Europe, Australia and New Zealand]
Many health food stores have free "throw away" papers
with ads. Many non-amalgam dentists advertise in these kinds of papers.
Check at your local health food store for ads.
Foundation For Toxic-Free Dentistry: [I
did not find a website for this group.] The FTFD will provide you
with a complete package of information which includes all dentists in the
state you specify and who have indicated they are Hg-free. Send a #10 SASE
with 78 cents postage to: Foundation For Toxic-Free Dentistry (or
just use FTFD), P.O. Box 608010, Orlando, FL 32860-8010 ; Fax: (407) 299-4149
American Academy of Biological Dentistry; P.O. Box
856, Carmel Valley, CA 93924 fax: (408) 659-2417 [I
did not find a website for this group.]
Environmental Dental Association; 9974 Scripps Ranch
Blvd., Ste. #36, San Diego, CA 92131 phone: (800) 388-8124
or (619) 586-1208 [I did not find a website for this
group.] [humm--- I also find them listed here: EDA, PO Box
2184, Rancho Santa Fe, CA 92067 Phone: 619-586-7626
DAMS (dental amalgam mercury syndrome): 800-311-6265
email@example.com (I do not see a list of dentists on the
Hal Huggin's office keeps a list of mercury free
dentists. Call (888)843-5832
Australasian Society of Oral Medicine And Toxicology (Australia)
"The purpose of the association is to promote concepts of Bio-Compatible
dentistry which are supported by scientific, peer reviewed research. "
No claims that any of the following protocols
are "good". You'll have to evaluate them yourself.
Other: this page has lots of links to dental organizations,
articles about mercury, articles about fluoride, etc.: http://www.bewellnaturally.net/HTML/Directory/TheDirectory/Categories-dir/dentists.html
children and dental work:
support & information groups
Here are links to ideas about getting dental
work done with children with ASD or special needs::
Below are many local area lists (and a few local
area meetings). A general caveat: some of these lists may not be
appropriate places to ask about local doctors. In most cases I do
not know what is discussed on these lists, and all lists have their own
culture. So, check and see. Hopefully you can find some people
in your area who will share their experiences with doctors and other local
I left out many truly tiny lists, and there may
be new lists. So, you may also want to search [in yahoogroups, or elsewhere]
for additional lists. This is just SOME of them.
California - So. CA physicians
California - So. CA resources (many types!) http://www.autismchannel.net/dana/socal.htm
California - So CA
CA - So. CA - some biomedical focus http://groups.yahoo.com/group/autisminterventionsocal/
California - San Diego
California - Santa Barbara
California - Santa Clara biomed (meetings) http://www.php.com/dosig/autism
Gaynelle Grover firstname.lastname@example.org
OR - FEAT Oregon
Northwest US (OR/WA)
(some restrictions to join)
WA - King County
(family members only)
AZ - [focus on Phoenix]
CO - brain disorders (wide range)
[parents & caregivers only]
Texas - Collin County North Texas
Ohio - biomedical
Missouri- St Louis
GA (southwest area)
GA - area north of Atlanta (North Fulton) http://groups.yahoo.com/group/nfasg/
GA - Albany
Alabama (Autism Society of Alabama) http://groups.yahoo.com/group/autism_alabama/
Indiana - Columbus
Illinois [special focus on Chicago] (small) http://groups.yahoo.com/group/Autism_Kids_Illinois/
Illinois - NE [special focus on Chicago] http://groups.yahoo.com/group/AutismNews/
Iowa - Des Moines [meetings]
Michigan: Macomb & St. Clair counties http://groups.yahoo.com/group/Autism-MacombASA/
WI (Autism Society of Wisconsin)
Florida - so. Florida
RI, Newport - parents' group
Trudy Daileader (401)841-5803 or Debbie Kavanagh (401)841-8888.
NJ - Hunterdon County [meetings]
list has notices of meetings
NJ - Bergen County- biomedical focus http://groups.yahoo.com/group/Mosaic-List/
VA - Loudoun County & area
VA - ASA - Northern VA
NC - Raleigh (very small)
NC - Wake County-Autism Soc. of NC http://groups.yahoo.com/group/WakeCountyASNC/
SC - South Carolina Autism Society http://groups.yahoo.com/group/scautismforum/
PA - Harrisburg ASA
OUTSIDE of the U.S.
UK - biomedical focus
Australia (very small list)
Indonesia (small list)
Malaysia -families fighting autism/Malaysia http://groups.yahoo.com/group/pr4a/
Canada: Ottawa - Carelton region
Canada: New Brunswick (small)