Doug's Home Page

Organizations & Resources

Organizations

The ALS Association

21021 Ventura Blvd., Suite 321
Woodland Hills, CA 91364-2206
Tel: (800) 782-4747
Tel: (818) 340-7500
Fax: (818) 340-2060

Forbes Norris MDA/ALS Research Center
at California Pacific Medical Center

(Deborah Gelinas, M.D.-Michelle Murray)
2324 Sacremento Street, Suite 150
San Francisco, CA 94115
Tel: (415) 923-3604
Fax: (415) 673-5184

Muscular Dystrophy Association

(Michelle Girard)
3300 East Sunrise
Tucson, AZ 85718
Tel: (800) 572-1717
Fax: (520) 529-5454

The Les Turner ALS Foundation

3325 Main Street
Skokie, IL 60076
Tel: (708) 679-3311
Fax: (708) 679-9109

The above organizations provide tremendous resources and a variety of services. Some offer funding for care or equipment as well as materials and services at a reduced rate or no charge. If you haven't yet been in contact with each of them, call or write today. The MDA number will give you a local or regional office. Also, just to have several pieces of information in one place, I've included the number to call when you're ready to initiate Social Security. Once you're disabled from work, call the number below and make sure you explain to them the circumstances of your illness, (terminal illness, prognosis), and that they should expedite the paperwork. If eligible, payments should begin in approximately six months.

Office of Social Security

Tel: (800) 772-1213

Online/Internet ALS Services

America Online ALS Bulletin Board

Main Menu -->
"Clubs & Interests" -->
"disABILITIES" -->
"disABILITIES Message Center" -->
"General Discussions" -->
"List Topics" -->
"ALS (Lou Gehrig's Disease)"

CompuServe ALS Bulletin Board

Click on Go, then type mda or mdaforum; read the disclaimer, then click on Proceed - that puts you on the MDA (Muscular Dystrophy Association) forum. From there you can browse the library or message sections - both of which have a separate ALS section. To get to the bulletin board, click on Messages, then on the ALS section.

Prodigy

Jump Medical Support BB; Subject: neurological; Topic: A.L.S.

ALS Digest

The ALS Digest is an e-mail subscription service that announces developments, answers questions and provides information and discussions among Researchers, physicians, patients and other interested parties. To subscribe address e-mail to: Bob Broedel (broedel@gly.fsu.edu)

Brunel MND Research Unit

The Centre for the Study of Health, CSHSD, Brunel University, England Stuart Neilson, PhD. maintains a data base with links to medical and technical terms on ALS available on the World Wide Web at:

http://http2.brunel.ac.uk:8080/~hssrsdn/alsig/review.htm

or access it now by clicking here.

Books & Manuals

"Amyotrophic Lateral Sclerosis: A Comprehensive Guide to Management"

Hiroshi Mitsumoto, M.D. And Forbes H. Norris, Jr., M.D., Editors

Send to:
DEMOS VERMANDE PUBLICATIONS - $39.95 + $4 p&h
386 Park Avenue South, Suite 201
New York, NY 10016
Tel: (800) 532-8663
Fax: (212) 683-0118

Managing ALS Manuals

Cost: $3 each

I - Finding Help
II - Muscular Weakness
III - Breathing Problems
IV - Swallowing Problems
V - Communication Problems

Write to:
The ALS Association
21021 Ventura Blvd., Suite 321
Woodland Hills, CA 91364-2206

"Love, Medicine & Miracles" - Bernie S. Siegel, M.D.

"The Road Less Travelled" - M. Scott Peck, M.D.

"Peace, Love & Healing" - Bernie S. Siegel, M.D.

"When God Doesn't Make Sense" - James Dobson

Videos

"What is ALS?"

Cost: $15