Epilepsy Resources and Information

The following list contains nineteen sources of information focused on the Epilepsy Community

1. The Antiepileptic Drug Pregnancy Registry, based at Massachusetts General Hospital. Its major objective is to obtain and information on the frequency of major malformations, such as heart defects, spina bifida and cleft lip, among infants whose mothers had taken one or more AEDs to prevent seizures or to treat any other medical condition.
2. The Charlie Foundation was founded in order to raise awareness about the ketogenic diet as a treatment for childhood epilepsy. The Foundation's role is to facilitate investigation, educate professionals, and inform families about the current status of the ketogenic diet.
3. Citizens United for Research in Epilepsy (CURE) s a nonprofit organization based in Chicago dedicated to finding a cure for epilepsy by raising funds for research and by increasing awareness of the prevalence and devastation of this disease
4. Epilepsy From the faculty at the University of Washington
5. Epilepsy Action is located in the United Kingdom. It has a large selection of information and choices for news, an online forum, research, advice, and more.
6. Epilepsy.com contain s a wide variety of information.
7. Epilepsy Foundation of America is dedicated to the welfare of people with epilepsy. Its mission is simple: to work for children and adults affected by seizures through research, education, advocacy and service.
   • eCommunities offer the unique opportunity to interact with individuals affected by epilepsy from around the world through threaded discussions and real-time chats.
   • Find the Epilepsy Foundation(s) in your state.
8. Epilepsy International
9. Epilepsy Links from Washington University in St. Louis, School of Medicine.
   • Pediatric Epilepsy Center
   • Adult Epilepsy Center
10. Epilepsy Scotland
11. The Epilepsy Therapy Development Project Many dealing with epilepsy tolerate serious side effects, including diminished cognition, as a price for seizure control. New therapies introduced over the last decade offer fewer side effects but have done little to bring effective seizure control to the significant population living with active and uncontrolled epilepsy. The Epilepsy Therapy Development Project's mission is to advance new treatments for people living with epilepsy.
12. Familydoctor.org
13. Jeff Morgan has his own site with info and a wide assortment of links all specifically focused on epilepsy. Check him out and see if it appeals to you.
14. Medline Plus related to Epilepsy. In depth information covering basics, research, tutorials, law & policy, children, teens, women, seniors, and more.
15. The National Society for Epilepsy is located in the United Kingdom and has a wide range of information, treatment, and aspects of living with epilepsy.
16. National Institute of Neurological Disorders and Stroke (NINDS)
17. Parents Against Childhood Epilepsy, Inc. (PACE), located in New York, was founded by a group of parents in response to their experiences in caring for the medical, physical, social, educational, developmental and emotional needs of their children who suffer from epilepsy and severe seizure disorders. Fundraising efforts support advances in medical research of epilepsy, as well as provide information and support to many families with similar needs

    Publicaciones en Español
    

18. Crisis Epilépticas: Esperanza en la Investigación Información sobre epilepsia del instituto nacional de desórdenes neurológicos y del movimiento/Spanish-language information booklet on seizures and epilepsy.
19. Convulsiones Febriles Convulsiones febriles hoja informativa/Spanish-language fact sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).