TWHH

The CADASIL Together We Have Hope respects the privacy of each individual who contacts us. We are grateful for your support and the crucial roles you play in helping us continue our valuable work. As part of our commitment to safeguarding your privacy we have adopted the online privacy policy outlined below.

We collect two kinds of information, site usage data, which is not individually identifiable, and individually identifiable information.

Our Web server automatically recognizes and collects the domain name of each visitor to our Web site. We collect information about visitors to our site, such as the number of visitors, what pages they access, and the length of their visit. This information is used in aggregate form in order to manage our Web site and improve its content.

We collect individually identifiable information about you when you choose to share information about yourself, for example, when you make a donation, request information or sign our guest books. This information may include your postal or e-mail address and when you were diagnosed with CADASIL.

Individually identifiable information is used to provide you with information or to deliver the service you have requested. If you provide your address, e-mail address to the CADASIL Together We Have Hope online, you may receive periodic contacts from us.

At certain parts of some of our site, only persons who provide us with written permission to be on the worldwide support group link.

We will not share your information with anyone unless you have given our permission in writing.

We occasionally send out an email newsletter and direct email communications from this organization.

Our site provides links to other Web sites where you can find out more about our CADASIL. Please note that the CADASIL Together We Have Hope is not responsible for the information practices of linked sites. This organization encourages you to review the privacy policy of each site you visit.

Important Medical Disclaimer: The content displayed in this website is designed to educate and inform. Under no circumstances is it meant to replace the expert care and advice of a qualified physician. Rapid advances in medicine may cause information contained here to become outdated, invalid or subject to debate. Accuracy cannot be guaranteed. This organization assumes no responsibility for how information presented is used.

If we decide to change our privacy policy, we will post those changes here. We encourage you to review our policy from time to time.

Thank you in advance for reading this policy.

This is our promise to you:
Our board acts in accordance with the nonprofit’s mission, values and goals always. Our board cares on what's going on and make decisions based on good balanced information.

Revised: December 23, 2007