||CADASIL Caregivers Unite
Support and Resources
If you or know someone who would like to volunteer to run this support group please contact us at info@CADASILfoudation.org
Since CADASIL has so many different symptoms, it is impossible to find a caregivers group for CADASIL. Caregivers are encouraged to look in your community for support groups for the symptoms your love one is having. A caregiver has been attending an Alzheimer's Dementia support group and she has reported this has assisted many ways of coping, understanding about dementia, ways to respond to her loved one and excellent resources in her area. Look in your area for a support group which could assist you
Seek support from other caregivers. There is great strength in knowing you are not alone.
There are many support forums for patients, but none reserved for CADASIL caregivers.
This is a place for caregivers to vent and discuss doctors, therapies, well-intentioned family members, etc. - all without the fear of insulting anyone.
www.caregiving.com helps you care for family members and friends. They are a community of family caregivers sharing stories, support and solutions. They possess a wealth of information and many resources on their website.
CADASIL CAREGIVERS UNITE FORUM
Caregivers.com even has a Classified section, you can place ads to sell supplies and equipment you no longer needed.
Other Caregivers Resources
Welcome to the Family Caregiving 101 Web site.
If you're caring for a loved one who is ill or disabled, this site was created for you. It's a great place to find assistance, answers, new ideas and helpful advice — for you and your loved one.
Caregiver Media Group, offers a weekly newsletter, discussion forums and extensive links to specific information resources. The Caregiver Media Group also produces "Today's Caregiver Magazine" which is the first national magazine dedicated to caregivers. The magazine supports the conferences that Caregiver Media Group hold. The next conference is called the Fearless Caregiver Conference and will be held on October 27th in Phoenix, Arizona.
Presently the CADASIL France Association and CERVCO (the reference center for CADASIL) are updating their caregivers guide specific for CADASIL patients and their families. Once it has been updated and translated, we will place it on this web page.
Thank you to Brown University, in Rhode Island for this above reference links for Caregiver Resources