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Welcome to CADASIL Together We Have Hope Non-Profit Organization! . . . CADASIL Is A Rare Genetic Disease . . .

Click here to learn how to pronounce Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts & Leukoencephalopathy

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CADASIL Together We Have Hope Non-Profit (CTWHH) was established on May 10, 2005 as a non-profit organization. The organization has followed the Health On the Net (HON) guidelines, which promotes and guides the deployment of useful and reliable online health information and its appropriate and efficient use. We pledge to continue our efforts to increase awareness, education, and knowledge of this disease with up-to-date information from trustworthy and reliable resources. We require no membership as we are here for you!
Find out more about CTWHH Organization.

Video - What is CADASIL in layman’s terms?
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This video was created for CADASIL Together We Have Hope Non-Profit by one of the International Scientific Advisory Members,  Professor Hugues Chabriat.  Professor Chabriat   is the Head of the Department of Neurology in University Hospital Lariboisiere and the Coordinator of the Referral Centre for Rare Cerebrovascular Diseases (www.cervco.fr) in Paris, France.  


 
 

We realize that finding what you're looking for can be a overwhelming. We have a wealth of information about the characteristics associated with CADASIL which will be able to educate yourself, family members, and the medical community. Click on the tabs above or look at the index below to navigate this site.

Our Mission
We are devoted to promoting awareness, education, support,
and research for CADASIL patients, families, friends, and
health care providers. We are dedicated to
enhancing the established communication network
among families as well as identifying sources of
medical care and social services. We foster advocacy
and open communication among all stakeholders
as we work collegially to find a
treatment or cure for CADASIL.
(See our Advocacy/ Accomplishments)

CTWHH has established affiliations with various CADASIL (and
other rare disease) organizations, doctors, and researchers
in addition to expanding collaborative efforts with new partners..
We are honored be be affiliated with . . . . . .

 
2013 Thoughts of others with CADASiL -
Rare Disease Day
 

 

WHAT IS CADASIL

EDUCATIONAL MATERIALS
COPING WITH CADASIL
LOCATE A DOCTOR

CADASIL is ..

Brochure (Print this out)

Family Experiences

USA Letters A thru L

Q & A by the Medical Professionals

Emergency Plan

Patient & Family Forum

USA Letters M thru Z

Medications?????

Definitions

Caregivers Unite Forum

Australia/New Zealand

Medicines/Procedures to AVOID

Podcasts by Doctors

Filing Social Security

Canada

Should I get Tested

CTWHH Educational Videos

Genetic Non-Discrimination Act

United Kingdom

Testing Information

Your Genes

Disability Info Around the World

Other Countries

Testing Locations

CADASIL Strokes

 

 

History of CADASIL

Map/Confirmed Cases    

Misdiagnosis

     
CARASIL      
RAISING AWARENESS & WAYS TO HELP STUDIES - PAST & PRESENT CADASIL RESEARCH WHO WE ARE

Giving Opportunities

2012 Canadian Study

Links

CTWHH History

Wristbands

2011 Dabigatran

Donate Directly To Research

Mission/Vision/Values

Ways to Help

2010 NYU

Mouse Model

International Scientific Advisory Committee

News Articles/Videos from around the world

2010 CADASIL Diet

Brain Donations Centers

Board of Directors

2010 CTWHH/ULF CADASIL Conference

2008 Dental

 

Public Disclosures

2010 CTWHH/ULF Scientific Symposium

2006 Aricept

 

Private Policy

2012 CADASIL Forum Conference

   

Use the name/logo

2013 Rare Disease Day

We are a 501(c)(3) non-profit organization, recognized by the IRS as eligible to receive tax-deductible donations. We would not exist without your support
and are here for you.  No matter what the size of your donation, you will impact the lives of many. Remember we have no paid staff and do not require membership dues.
We run solely on donations. Thank you so much for your continued support as“Together We Have Hope!”

donate Through Pay Pal you don't need to have a PayPal account in order to donate.  Use your bankcard, credit card or your checking account, even overseas transactions are accepted.  All transactions are secure and none of your personal financial information is shared with us.

"The information provided on this website is designed to complement, not replace the relationship between a patient and his/her own physician.”

Contact us as we are here for you!
512-255-0209 or 1-877-519-HOPE
e-mail: info@cadasilfoundation.org


CADASIL Together We Have Hope
501 (c)(3) Non-Profit Organization
3605 Monument Drive, Round Rock, TX 78681-3707

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Updated: May 6, 2013

© Copyright: 1997-2013

 
 
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