CADASIL Together We Have Hope Non-Profit (CTWHH) was established
on May 10, 2005 as a non-profit organization. The organization has followed the Health On the Net (HON) guidelines, which promotes and guides the deployment of useful and reliable online health information and its appropriate and efficient use. We pledge to continue our efforts to increase awareness, education, and knowledge of this disease with up-to-date information from trustworthy and reliable resources. We require no membership as we are here for you! Find out more about CTWHH Organization.
This video was created for CADASIL Together We Have Hope Non-Profit by one of the International Scientific Advisory Members, Professor Hugues Chabriat. Professor Chabriat is the Head of the Department of Neurology in University Hospital Lariboisiere and the Coordinator of the Referral Centre for Rare Cerebrovascular Diseases (www.cervco.fr) in Paris, France.
We realize that finding what you're looking for can be a overwhelming. We have a wealth of information about the characteristics associated with CADASIL which will be able to educate yourself, family members, and the medical community. Click on the tabs above or look at the index below to navigate this site.
Our Mission We are devoted to promoting awareness, education, support,
and
research for CADASIL patients, families, friends, and
health care providers. We are dedicated to
enhancing the established
communication network
among families as well as identifying
sources of
medical care and social services. We foster advocacy
and open communication among all stakeholders
as we work collegially to find atreatment or cure for CADASIL.
(See our Advocacy/
Accomplishments)
CTWHH has established affiliations with various CADASIL (and
other rare disease) organizations, doctors, and researchers
in addition to expanding collaborative efforts with new partners.. We are honored be be affiliated with . . . . . .
2013 Thoughts of others with CADASiL -
Rare Disease Day
