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What is CADASIL?
Medical
Professionals Resource
Brain Behavior
Brief History of CTWHS
CADASIL Study Results 
Cases
Coping and News Articles
Doctors/Physicians Locator
Donations
Emergency Plans  
Forum 
Fundraising (no cost to you)
Newsletters
Nondiscrimination Act 
Privacy Policy
Registry and have your number count!
Research  
Scientific Advisory Committee
Sites of Interest (links) 
Social Security
Tests
Tissue Bank 
Understanding Genetics and Strokes
Volunteer
Who raised funds for CADASIL and how?
Personal Family's
Experience (L-Arginine)    

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     WELCOME TO OUR WEBSITE           

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CADASIL STUDY RESULTS ARE POSTED CLINK ON THIS LINK

                      
Cerebral autosomal dominant arteriopathy with subcortical infarcts and leukoencephalopathy, usually called CADASIL, is an inherited condition that causes stroke and other impairments. This condition affects blood flow in small blood vessels, particularly in the brain. An abnormality in the muscle cells surrounding these blood vessels (vascular smooth muscle cells) gradually destroys these cells. The resulting blood vessel damage can cause migraines and other impairments of normal brain function. Later in life, the damaged blood vessels can cause reduced blood flow to various tissues in the body (ischemia). Although the severity of symptoms varies among those affected, people with CADASIL typically have more than one stroke in their lifetime. Recurrent strokes can progressively damage the brain, causing loss of intellectual function (dementia).

CADASIL is not associated with the common risk factors for stroke and heart attack, such as high blood pressure and high cholesterol, although some affected individuals might also have these health problems.  Reference: http://ghr.nlm.nih.gov/condition=cadasil  

Below are information documents.  Pass them on to your doctors or anyone who might be interested. 
  
(The documents are pdf (Adobe Acrobat) format. To download a free copy of Acrobat Reader, please click here.)

Click on the underlined words to print out these educational materials.


Welcome                                            
Brochure
Fact Sheet
Definition Sheet
Emergency Sheet

Within this site, you will find information about characteristics associated with CADASIL and be able to educate yourself, family members and the medical community.  You will also find information about the CADASIL REGISTRY, most recent research, newsletters, pending conferences, a doctor locator and links to other sites of interest.

Our Mission,  Vision and Values

Our Mission: We are devoted to promoting awareness, support and research for this rare genetic disease including patients, families, friends and healthcare providers. Creating a communication network among families and identifying sources of medical care and social services.

Our Vision: An environment where affordable diagnosis and up-to-date care is readily available with cost effective treatment for everyone.  

Our Values: Families, Advocacy, Medical Technology, Innovations, Loyalty, Integrity, Ethical Practices, and Service to Society, which spells out FAMILIES.
 

 

 
Best Wishes - CADASIL Board of Directors

Message Board

Revised: June 24, 2009


info@cadasilfoundation.org
   
All rights reserved.       
Copyright © 2009

 

 
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