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Monthly
Meetings:
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First
Tuesday of every month, 7:30-9:00 pm, Telestar Court Building, Gemini room,
2990 Telestar Court, Falls Church, Virginia 22042
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Contacts:
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Treasurer
- Daphne Burroughs, 703-369-2615
Secretary
- Dorsey Vengrouskie, 301-946-9335, silverbrumby@erols.com Database
Manager, Newsletter Editor – Beth Harris, 540-439-3656, betheharris@earthlink.net Visitation
Coordinator - George Willis, 703-971-2883, gwillis464@aol.com Communications
Coordinator - John Vengrouskie, 301-946-9335 Community
Outreach Coordinator – Stan Smith, 703-931-6040 Telephone
Committee Chair - Paula Golladay, 703-820-7987, pgolladay@cox.net Librarian
– Jason Bulger, 301-680-2159, jason.bulger@medstar.net |
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Web
Page:
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www.inova.org/rehabilitation/amputee_support.htm
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The cost of double-sided business cards was discussed and found to be prohibitive.We will stick with the original business cards with the other local support groups listed.Betty Bernat is going to try and find a local organization that will pay for the cards for a “one-liner” added to the card.Betty also stressed the need for members to take our brochures to their medical appointments and pass them out - she noted great success when Helmut was taking rehab at Mount Vernon.
We had one potential amputee and one new amputee at the meeting.So they had the floor for questions and answers after roll call and the business meeting.
Arm Amputees (Upper Extremity) Wanted – I received a call from a Social Working in Arlington who is working with a 14-year-old arm amputee due to electrocution.He is mostly Spanish speaking.He needs a mentor or someone to talk too with a similar amputation and is supposed to be attending the June meeting.So we need our arm amputees to try and attend next month’s meeting.Thanks!
Doonesbury - Did everyone catch the Doonesbury strip?If not, here it is.

Services
and Products
ASGNVA
Lending Library
– Jason Bulger, Marketing Representative from Nascott Rehabilitation Services,
attends all the amputee support meetings in the Washington Metropolitan
area and really helps out and pitches in with our group all the time.But,
since he works for Nascott, it’s a little tricky what he can and cannot
do for ASGNVA.But he can give time
and muscles.So he has volunteered
to be our librarian (yeah, Jason).At
the May meeting, he received a box of materials and books that have been
acquired by ASGNVA.As an amputee,
I don’t want to carry that box around – I’ll keep adding to it as I find
things and receive items from different organizations, but I don’t want
to ever carry the whole entire box.But
Jason doesn’t mind – he’s young and strong.So
now we have a lending library and here’s what’s in it so far:
·Amputee
Coalition of America Print and Video Resources – 2004 Edition
·Surviving
Limb Loss – A series of pamphlets, developed by the Landmine Survivors
Network, a leading global advocate for persons with limb loss.
·Legal
Rights of the Catastrophically Ill and Injured:A
Family Guide, Second Edition, Joseph L. Romano, Attorney and Counselor
at Law, 1998
·Physical
Fitness:A Guide for Individuals
with Lower Limb Loss, Department of Veterans Affairs, Rehabilitation Research
and Development Service, A Clinical Guide by Ernest M. Burgess, M.D. and
Albert Rappoport, C.P.
·The
Commonwealth of Virginia Roadmap to Services – A resource guide for people
with disabilities, long term illnesses, and the elderly
If
you want to look at any of the materials, you have to come to a meeting.Jason
already attends meetings all the time.Now
he’ll be extra careful to make it to meetings.Or
you can contact him on the Nascott web site:www.nascott.com
- he’s done a very good job on it so far.Check
it out – books and web site!
Member
Updates

Paula Golladay – Paula had to undergo a recent amputation – she had a TMA performed on her right foot.A TMA, or Transmetatarsal Amputation is through the tarsal (tarsus) or foot bones.She is already a below knee on the left side.But she came to the meeting in a wheelchair and had a very fluffy dressing.
NAGA’S “First Swing” Seminar and “Learn to Golf” Clinic – Sponsored and presented by the National Amputee Golf Association, PGA and DAV; Hosted by US Orthotics and Prosthetics.This event is free for all individuals with disabilities!Golfers of all ages and all types of disabilities are invited.Registration is required.
‰Place:Fredericksburg,
VA, Cannon Ridge Golf Club
‰Wednesday,
June 2, 2004 – Training Seminar for Rehab Professionals and Golf Pros,
8:30 am – 12:00
‰Wednesday,
June 2, 2004 – “Learn to Golf” Clinic for Golfers with Disabilities, Rehab
Therapists and Golf Pros, 12:30 pm – 3:00 pm
‰For
More Information:Greg Wright, CP,
US Orthotics & Prosthetics, 30 Town & Country Dr., Suite 103, Fredericksburg,
VA, 22405, 800-333-4102, gwright011@aol.com.
Home
Modification Seminar & Product Expo,
May 25-26, Arlington County, RPJ Housing, other agencies and non-profits
are hosting a Home Modification Seminar & Product Expo on May 25 and
26 at the Arlington Department of Human Services, 3033 Wilson Boulevard,
Arlington.To download a registration
form or for more information, go to www.rpjhousing.org.Pre-registration
is required; $10 fee to attend the conference, which includes lunch, but
a limited number of scholarships are available.
The
Amputee
Coalition of America’s 2004 Annual Conference and Exposition in Nashville
is rapidly approaching! Sign up now for “Early-Bird” registration and save
$$$.And rooms are going fast!For
more information, please call 1-888/267-5669.
Area Access Open House – Area Access will be holding an “Open House” on May 20-22, 2004.This is an opportunity to get your scooter cleaned and serviced for free.They will have lots of prizes such as:
ðLeisure
life electric scooter, Pride seat lift chair, Bruno truck lift, 4 wheel
walker from Clarke Healthcare,3-foot
ramp from Homecare Products, 8 scooter batteries from MK Battery, 2 $100
store credits from Area Access, 4 $50 store credits from Area Access.
During
the open house they are offering free service on scooters:
ðCheck
tire pressure, Adjust and lubricate chain and belts, Test battery, Inspect
all connections and structural components and Inspect trunk lift, if requested.
Area
Access is also offering 20% off on all parts and accessories and batteries
are specially prices at $75 each.
In
addition, there will be free burgers and dogs on the grill, snacks, refreshments
and much more.Here are the hours
and directions for the Open House.
ŽDate:May
20-21May 22
ŽTime:9:00
am to 3:00 pm9:00 am to 2:00 pm
ŽWhere:7131
Gateway Court, Manassas, Virginia
ŽDirections:Take
exit 47A (Rt. 234 Business South) from Route 66.Go
to the light at Balls Ford Road and turn left.Continue
1.2 miles to Gateway Court and turn right.Area
Access will be directly in front on you.
Monthly
Meeting
– The next monthly meeting is June 1, 2004.
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May
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1
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2 Helmut
Bernat
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3
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4ASGNVA
Meeting |
5
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6
Joan Pressler
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7
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8
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9
Mother’s Day
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10
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11
”Winchester
ASG ” Kessler
ASG ”Fredericksburg
ASG |
12 Jeff
Schaffer
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13 Joyce
Hawes
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14
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15 William
Carter
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16
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17
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Roby Sheppard
WAA
Meeting |
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22
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23
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24 Charles
Gordon
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25
Patrick Roland
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26
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27 Georgetown
ASG
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28
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29
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30 Minor
Twymann
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31 Memorial
Day
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1 ASGNVA
Meeting |
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3
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4
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5
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June
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1 ASGNVA
Meeting
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2
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3 Abdelgani
Hamid
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5
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7
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8
”Winchester
ASG ”Kessler
ASG ”Fredericksburg
ASG |
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10
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11 Paula
Golladay
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12
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13
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14
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15
WAA
Meeting |
16 Brenda
Blake
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17
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18
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19 Chuck
Rattman
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20
Bud Atchison
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21
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22
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23
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24 Georgetown
ASG Meeting
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Washington
Amputee Association–
National Rehabilitation Hospital, 102 Irving Street, NW, Washington, DC,
Ground Floor Dining Room (rear section, near the windows and behind the
partition), 3RD Tuesday of each month from 6:30-8:30 pm.Contact
Roy Dwyer (301-897-2816), Angela Jones (301-794-0183) or Becky Lehman,
RT/NRH, 202-877-1578, rebekahlehman@juno.com
Georgetown
University Hospital–
4TH Thursday of every month, 7:30-9:00 pm, Martin Marietta Conference
Room, Lombardi Cancer Center, Entrance 1 (park in the Levey Center; handicap
parking available; transit access can drop off/pick up at this location.
Call 202-444-8037 and leave a message.
Kessler
Adventist Group–
Second Thursday of the month, 6:00-8:00 pm, 2nd floor, Kessler Adventist
Rehabilitation Hospital, 9909 Medical Center Dr, Rockville, MD.Contact
Sandy Shadea, 240-864-6196.
Kernan
Hospital Group
– 3rd Wednesday of the month, 6:00-8:00 pm, Room G604, Kernan
Hospital, 2200 Kernan Dr., Gwynn Oak, MD.Contact
Mark Senker at 410-581-7027 for more information.
Winchester
Amputee Support Group
– 2nd Tuesday of the month, 5:30-6:30 pm, Conference Room, 2nd
floor, Winchester Rehabilitation Center, 333 W. Cork St, Winchester, VA.Contact
Christie Augustine, 540-536-5113.
Fredericsksburg
Amputee Support Group
– 2nd Tuesday of the month, 7:00-9:00 pm, the disAbility Resource
Center, 409 Progress Street, Fredericksburg, VA.Contact
Greg Wright, 540-899-2655 or 800-333-4102.
Animals
Offer Independence For So Many With Disabilities
For
Andy the black Lab, slipping on a blue pack is the same as punching a time
clock.It means it's time for work.
His pack conveys the same message to others. It reads: "Please Don't Pet
Me, I'm Working."
Five
days a week, Andy assists Anne Sullivan, the office manager at the disAbility
Resource Center in Fredericksburg. He picks up paper clips, bottle caps
or any other objects Sullivan drops and can't reach from her wheelchair.He
also gets files or books that are buried deep in cabinets.
"He
makes me more independent," said Sullivan. "Before, I was forever asking
somebody to get something for me, and I like being able to do things for
myself."
Andy
originally was the service dog for Rob Boyd, the center's executive director.
He hoped Andy would help with his balance as he used a walker.
When
that didn't work out, Sullivan gave him a try. She doesn't have room for
him at her house, so Andy takes off his pack on nights and weekends and
goes home with office administrator Karen McDowell.
Sullivan
didn't know how useful Andy could be. "He's proved to me that a service
dog is the best thing for a person with a disability," she said.
Studies
show service dogs can save their owners thousands of dollars by eliminating
the need for paid human help.
A
1996 report in the Journal of the American Medical Association considered
the initial cost of training a service dog--which can run as high as $10,000--and
the annual expenses of food and veterinary bills.Then
it factored how much a disabled person paid for human help, from $8 to
$12 an hour. Having a service dog around could save $8,000 to $16,000 a
year, the study indicated.
More
people are acknowledging the value of service animals, especially as they
assist with more kinds of disabilities.
There
are currently five categories of service dogs, according to the Delta Society,
an organization in Washington State.
Guide
dogs help the blind, and hearing dogs assist those who are deaf or hearing
impaired.
Mobility
dogs help people with physical disabilities in varied ways. They may open
doors, turn on lights, and help their owners get dressed or retrieve objects.
Medical-alert
dogs sense on-coming conditions in their masters, such as seizures, heart
attacks or diabetic reactions.
Psychiatric-support
dogs are the newest type of service animals. They help owners who may be
afraid to go out in public by shielding them from others or nuzzling them
when they freeze during a panic attack.
Dogs
are mostly used as service animals, but cats and certain types of monkeys
have also been trained for specific tasks. There are even miniature horses
that offer the same help as Seeing Eye dogs.
Some
are no bigger than powder puffs, but they still have a huge impact on their
owners.
"I'd
be lost without Peanut," said Nanci Seiden, who lives in Aquia Harbour
in North Stafford. "I just depend on him a lot, in ways people don't understand."
Peanut
is a four-pound Pomeranian with dark brown eyes and fiery-colored fur about
the same shade as his owner's hair.
He's
also a hearing aid to his master, who was born deaf in one ear and has
limited hearing in the other.
So,
Peanut the Pomeranian barks or bounces around on spindly legs to let Seiden
know when the phone rings or someone is at the door. He licks her face
or pats his paw on her cheek if the alarm or smoke detector goes off and
she doesn't react.
Peanut
is one of an estimated 20,000 animals across the country trained to perform
specific tasks for their disabled owners. But he doesn't fit the typical
image - that of a guide dog for the blind or a large Labrador assigned
to someone in a wheelchair.
Maybe
that's why he and Seiden, 49, attract a lot of attention. Much of it is
friendly, as women and children point to the "cute widdle puppy."
Some
of it is not so good.
Owners
of local discount stores and groceries have detained Seiden at service
desks or told her she can't take her pet where food is prepared and sold.
Fellow restaurant customers have complained about having a dog at the table
next to them. A passenger train in California put her off at a depot--a
no-longer-open depot in an isolated part of town--because she refused to
keep Peanut in a cage or in the compartment designated for pets.
These
days, Seiden shows her certificate, which states Peanut is a trained service
dog. She tries to explain that people and their service animals are allowed
anywhere other customers go, under the Americans with Disabilities Act.
And
she gets frustrated with employees and managers who deal with the public
every day and don't know the law. She's called the corporate headquarters
of several businesses and is considering a lawsuit against one.
"My
whole thing is, excuse me, why aren't these people, who are working in
the service industry, being trained properly?"
Seiden
admits she gets flustered because the service-dog issue is one more thing
she has to battle.
She
suffers from reflex sympathetic dystrophy syndrome, a condition triggered
by a simple accident, such as a twisted ankle or broken arm. It causes
a short circuit in the nervous system, then spreads throughout the body,
bringing on chronic pain.
Seiden
sometimes has trouble with the aches--and the pain of having to define
Peanut's role to others.
The
disabilities act says she doesn't have to do any explaining or show any
proof of the dog's training. All business owners can do is ask if the dog
is a service animal.
Beyond
the hearing-related help at home, Peanut provides a lot of comfort to Seiden,
said her friend, Sharon Nuzman of North Stafford.
Nuzman,
who is physically disabled, has been around service animals for 30 years
and has never seen this kind of relationship between dog and master.
"This
dog lives, breathes and sleeps her needs," she said. "Sometimes it's just
a level of comfort that he brings. She does not deal well when he is not
with her."
That's
why Seiden takes Peanut to the hair salon, grocery store or pharmacy at
Wal-Mart, where she buys hundreds of dollars in medicine a month.
She's
been in North Stafford for six years, and people at most of her regular
stops recognize her. A hairdresser at Impressions Hair Skin & Nails
in Aquia Towne Center recently pointed to the dog in Seiden's arms and
said to a customer, "That's Peanut. He brings Nanci in every week to get
her hair done."
It's
when stores open, expand or change management that Seiden has problems.
But
people with service dogs face access issues across the country, said Karen
Miller. She's a director at Delta Society, an organization in Washington
State that educates the public about the role of service animals.
Her
agency gets more than 5,000 complaints a year from disabled people who
have been told they can't bring their dogs into public places.
People
have a particularly hard time accepting ones that don't fit the big-dog
stereotype.
"If
you showed up with a Pomeranian, and you didn't look like you were blind,
and you said, 'This is my service dog,' people would probably laugh at
you," Miller said.
The
disabilities act passed 12 years ago, but it's still not widely known,
she said.
Things
get even more confusing when state laws say one thing and the disabilities
act, which is a federal law, says another.
For
instance, the Virginia Department of Agriculture and Consumer Services
regulates state food laws. In its written regulations for retail food stores,
there's only one line about service animals. It reads: "Guide dogs accompanying
blind persons shall be permitted in sales areas."
So
a store manager could assume that Pomeranians like Peanut, as well as every
other service animal except guide dogs, are not allowed in food stores.
That's
not correct, either, a department spokesperson said. The department allows
all types of service animals in stores; it just hasn't updated its regulations
since 1986.
Seiden
would like to clear things up for state agencies and businesses that are
behind the times. She'd like them to realize that the Americans with Disabilities
Act takes priority over local or state laws.
Seiden
also wishes that businesses would react the way the management did at North
Stafford's International House of Pancakes.
Seiden
had a bad experience there in January. Customers complained because Peanut
was at the table, and waiters were rude to her, she said.
She
got in touch with Stephen Bennett, director of operations at several stores.
He knew many details of the disabilities act, such as the size and location
of handicapped parking spaces.
But
he didn't realize there were service animals beyond Seeing Eye dogs. He
talked with Seiden several times and welcomed her suggestion to meet with
store management.
Seiden,
a corporate manager before she went on disability in 1992, will give a
seminar to IHOP employees in November. She'll present educational materials
from the Delta Society about the types and tasks of service animals.
She's
made the same offer to managers in other local businesses, but they've
declined.
She'll
keep pushing the issue, not just for herself and Peanut but also for others
who may not want to call attention to their disability. "I guess I don't
want anyone else to go through what I've had to," she said.
Retrieving
a book that he has dropped or getting through a door before it slams against
his motorized wheelchair can be tough.
"I
need some help; I really do," the 66-year-old Unionville man says.
Mager,
a Vietnam War veteran and career Army man, is hoping that help will come
from a black Labrador retriever named Chico.
"I've
spent some time with him and he's a well-trained dog," Mager says.
Chico,
who just turned 2, is completing his schooling and should be ready by the
end of the year. Mager is hoping he can raise enough money between now
and then to buy the Lab as both a companion and a helper.
Chico
is being trained by a nonprofit organization called Service Dogs of Virginia.
Located in Keswick, near Charlottesville, the group headed by Peggy Law
provides dogs specifically trained to help disabled people.
"Our
dogs help them live a full life," Law says.
Service
Dogs of Virginia, which began about two years ago, placed its first dog
several months ago with a disabled Radford University student. Chico will
be the group's second dog.
"This
dog would be very important to me," Mager says. "It is sometimes very difficult
to even open and close doors, especially commercial doors. A dog could
keep the door open until I get in."
Law
says Chico is able to retrieve a telephone, turn on a light or even stand
on his hind legs and place money on a store counter. These are all tasks
a healthy person takes for granted, but ones a man strapped into a wheelchair
often finds overwhelming.
To
get Chico, however, Mager must come up with $8,500. That's a lot for someone
on a military pension.
The
Piedmont Chapter of the Vietnam Veterans of America found out about Mager
and is trying to help. They have held one fund-raiser on his behalf and
hope to hold more.
"It
just seemed like the right thing to do," says Sam Thompson, president and
one of the founders of the chapter.
Thompson
has also put Mager in touch with the Paralyzed Veterans of America and
that group is trying to help, too.
If
Mager gets Chico, he and the Lab will still need two or more weeks of working
together before they will be ready to perform as a team. Keswick, however,
is less than an hour's drive from Unionville, and Mager feels he can handle
that.
Mager
was drafted when he was 25. "My father-in-law was on the draft board and
when my wife and I split up he made sure they got me," he says.
He
spent 21 years in the Army before a stroke forced him to retire in 1982.
Poor
circulation necessitated the removal of both legs about a year ago. Now
the vet, who served in the Delta region of Vietnam in 1969, often finds
himself at the mercy of his surroundings.
Thompson
believes Mager's exposure to Agent Orange during his stint in Vietnam may
have been responsible for his circulation problem.
Mager
is not married, but a female companion helps him at night. While she is
at work, however, Mager is alone in his home.
Chico,
who began training as a puppy, is now in the final stages of schooling.
But training is only part of the process, Law says.
"We
also have to wait until the dog becomes mature and reliable," she says.
Law
says that a service dog can be more than just a companion and a helper.
"Sometimes
people feel awkward about going up and talking to someone in a wheelchair,
but everyone wants to come and pet the dog," she says. "A dog like Chico
can help break the ice."
SERVICE
DOG ORGANIZATIONS
Blue
Ridge Assistance DogsProvides service
dogs for people with
8620
Smith Lanedisabilities and social
therapy dogs.
Manassas,
Virginia 20112(703)369-5878 or (703)591-1185
P.O.
Box 334people with special needs using
positive
Sykesville,
MD 21117reinforcement training approach.Will
(410)655-2858train
owner's dog if it passes evaluation.
Debbie
Gavelek(410) 880-4178, TTY: (301)570-7570
P.O.
Box 5508Email: fidos@fidosforfreedom.org
Laurel,
MD 20726
4783
Turkey Sag Roadwheelchairs.
Keswick,
VA 22947(434) 975-3770
Email:
plaw@cstone.net

Support
Offered For Amputees
Local
amputees to start a support group in Fredericksburg
By
RACHELLE STIGER
Date
published: 3/7/2004
Local
prosthetist Greg Wright told members of his new amputee support group he
will take them skydiving, roller-skating, swimming or running if that's
what they want to do.
Wright
is aiming to "show the amputee population the amazing ability of an amputee
as opposed to the disability" through the newly formed Fredericksburg Area
Amputee Support Team.
FAAST
is Wright's second attempt to get amputees together. This time it will
be successful, Wright said, because people are attending the meetings and
seem more dedicated to the group. He's tried so hard to get a group going
because a lot of people through the years have come to him about it. "It
was calling me. I couldn't not do it; it was becoming my mission," Wright
said.
In
his 14 years as a prosthetist, Wright has been astounded at how easily
amputees bounce back from their losses to do things they did before the
amputation, things like ride a motorcycle. The key is maintaining a positive
attitude, said Wright, who in his own work with amputees tries to keep
clients from thinking about their lost limb.
"I
could build a bionic leg, but you won't walk on it if you don't want to,"
Wright said. "You could walk on a bucket and a broomstick."
Wright
hopes the group will be a referral resource for doctors and an inspiration
to new amputees.
While
an amputee patient is still in the hospital, FAAST will send one of its
members with similar injuries to talk to him or her. This summer, members
of the group will be certified as peer counselors.
Every
new amputee who has spoken to a more experienced amputee comes out of the
hospital more positive about his future and more likely to walk again or
do the things he wants.
Before
FAAST, the closest amputee support groups were in Richmond and Northern
Virginia. Wright estimates that amputees in the area number in the hundreds.
Most have lost a limb to peripheral vascular disease, or poor circulation,
and injuries that don't heal because of diabetes. Right now, the group
consists only of lower-body amputees, but all are welcome.
Still
in its infancy, the group has been meeting once a month since December.
They have already gone bowling once, and have scheduled a golf clinic in
June with Professional Golfing Association members under the Eastern Amputee
Golf Association.
Jim
Brothers, Coping Through Humor
Jim
Brothers believes "humor makes people feel comfortable [with my disability],
especially kids."
So
he tells jokes like this one: If I lost two feet, he asks people, shouldn't
I be 4 feet, 4 inches tall?
Before
he lost both legs to infections spurred by diabetes, Brothers measured
6 feet, 4 inches.
He
bets other men that he can lose 10 pounds in five minutes. The legs come
off, and, voilà, he's 10 pounds lighter.
And
he occasionally puts his leg on backwards.
Once
at a wedding, a man noticed the mistake and politely called Brothers' attention
to it. "I just don't know if I'm coming or going," Brothers told the man.
It
would seem his humor is also the way Brothers copes with his loss.
He
takes in stride things like falling in the shower and waiting four hours
for someone to find him; stepping out of bed in the middle of the night
to be awakened by his own body crashing on the floor and the other mishaps
that come with the territory.
Brothers'
left leg turned black five years ago while he was re-tarring his driveway.
Not thinking much about it, he ran water over the leg to wash it off, but
the color didn't change. He didn't feel any pain, but it turned out that
the leg was infected and wouldn't heal because of his diabetes. After losing
the second leg three years ago, Brothers was declared "totally disabled."
He
doesn't let that label get to him, though. "A lot of people think their
life is over [after an amputation].They
don't seem to want to help themselves," Brothers said. "Fortunately, that's
not the way I'm built. I never looked at it as the end of my life."
Yet,
as he speaks, something in his voice hints at a deeper loss. He talks about
losing not just his legs, but also a part of his ego. Brothers used to
be a big man. He would roughhouse with his grandkids and tower over everyone.
Now, he must take things a little easier--stay inside on icy days.
Brothers
said he has learned to persevere because of something that he witnessed
after the first amputation. He was sitting in McDonald's one day after
dropping his daughters off somewhere; his artificial leg was propped up
on a chair. Two truck drivers walked by him, smirked and pointed.
Brothers
was irritated by this, thinking they were laughing at his expense, so he
walked over to them.
"Do
you have a problem with people who are missing limbs?" he asked the two
guys.
The
men shook their heads and pulled up their pant legs. Both of them had two
artificial legs.
Brothers
wants to be that kind of encouragement to others in FAAST and help them
overcome that defeatist attitude. He also likes to organize and run events
so he'll get involved in the group that way.
My
lousy way of getting it done is better than your great way of not doing
it. --quoted or originated by Terry Rossio
c/o
Beth Harris
6316
Sumerduck Road
Remington,
VA 22734-2308
RETURN
SERVICE REQUESTED


Where
do we go from here?
Sharon
Hayes, Reaching Kids
Sharon
"Doll" Hayes' simple scrapbook--Doll's Leg--chronicles her early years
with a prosthetic leg in a way that children can understand.
Each
turn of the page reveals a black-and-white picture and a neatly typed explanation.
Hayes
is making more of them for her six grown nephews and nieces. Through her
story, she hopes to teach their children, her grandnephews and grandnieces,
that "people who have disabilities need our special consideration."
She
doesn't say this, though, because she's been treated badly. Actually, quite
the opposite.Although Hayes never
married, she says she has always felt well loved -- by her parents, her
two sisters and her grandfather who would show off her leg to his friends.
The running joke in her family, affectionately said, is the phrase, "Wait
for Sharon."
Growing
up in the 1940s, Hayes didn't know anyone else her age with an artificial
leg, which also made her feel special.
Hayes
was born without a kneecap and the weight-bearing bone on her left leg.
Doctors said it would probably never grow and suggested amputating it while
she was still young. She was 2 when her leg was cut above the knee and
replaced by a prosthetic leg six months later.
Since
then, Hayes has had a variety of prosthetic legs, first made of wood and
now foam. She's learned naturally how to approach life without a limb--a
stark contrast to the awkward transition that the other FAAST amputees
have had. That's why Wright believes she will be a huge asset to the group;
Hayes can share what she's learned from her years of experience.
Hayes
doesn't think she's got anything to offer, but is willing to explore how
the group will blossom.Hayes said
she hopes the group will push sports because she likes to stay active;
she's never let her leg slow her down. "I've spent my life trying to convince
everyone I could do it as well. I may do it differently, but I can do it
just as well," Hayes said.
In
her adult life, Hayes has worked with people who never even knew she's
handicapped. "One of the greatest compliments someone can give me is, 'Oh,
I forget you have an artificial leg.' That's the way it should be," Hayes
said.
On
the last page of her scrapbook, Hayes has written in pen: "The loss of
a limb doesn't make you less. Use it to make you more. I'm still untapped
treasure."