what is delta spd

HPS

Welcome!

This website is devoted to sharing information about delta storage pool deficiency (delta SPD), a rare blood platelet and bleeding disorder. Delta SPD is also referred to as a storage pool defect or a platelet dense body deficiency or defect.

On this website you'll find:

• General information about what delta storage pool deficiency is (symptoms, etc.)
• A brief explanation of what platelets do
• Information about two NIH studies open to patients with storage pool deficiencies
• Information about Hermansky-Pudlak Syndrome, a form of albinism that includes a bleeding tendency caused by delta SPD
• Two additional medical pages focusing on relevant medical articles and related links for more information

Note: The links page has been updated (April 2009).

If you have questions or want to be in touch about delta spd, please send e-mail to deltaspd@earthlink.net with the words "Delta SPD" or "bleeding disorder" in your subject line.

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A word from the webmaster: My name is Sandy and I was diagnosed with delta SPD in 2002. At that time, information about delta SPD was difficult to find on the internet and I spent a lot of time searching for any articles, websites, or news that I could find. I didn't want anyone else to go through that, so I put together this website as a resource for other patients.